What are palliative care healthcare professional’s experiences of supporting palliative patients in managing digital legacy as part of advance care planning?

Aims:

RESEARCH AIM

This study aims to explore the experiences of palliative care healthcare professionals in supporting patients to manage their digital legacy. 

RESEARCH OBJECTIVES

1. To identify current knowledge and skills of healthcare professionals participating in advance care planning conversations.
2. To highlight support required for healthcare professionals to understand and include digital legacy as part of advance care planning.
3. To make recommendations to support palliative care healthcare professionals to undertake conversations about digital legacy.

This study is a Liverpool John Moores University study

Recruitment:

This study is now closed to recruitment

Results:

You can watch a short video describing study results here:

A spotlight on Digital interventions in palliative and end of life care - Sarah Stanley 01 - V2- without subtitles 2 on Vimeo

You can read the full published article here: 

A grounded theory study exploring palliative care healthcare professionals’ experiences of managing digital legacy as part of advance care planning for people receiving palliative care - Sarah Stanley, Karen Higginbotham, Anne Finucane, Amara Callistus Nwosu, 2023 (sagepub.com)