Substance Use and End of Life Care: Will a New Model of Care for People for people with End Of Life Care Needs who use Substances Improve their Access to and Experience of End Of Life Services?

Aims:

This research has two primary aims.

First: What should a new, co-produced, model of care look like for people using substances needing end of life care?

Second: Does the new model have the potential to improve people’s access to, and experience of, end of life care?

Recruitment:

This study is a Manchester Metropolitan University Study. This study is open to recruitment and is looking to recruit:

People with Lived Experience:

• Adults (18+) who are capable of giving informed consent
• Who self-define as having problems relating to their use of substances (past or present)
• Who have a chronic health condition and are assessed as likely to be in the last 12 months of their life.

Family, Friend, caregivers:

• Adults (18+) who are capable of giving informed consent
• Who care for people with both substance use and end of life care needs in their personal lives.

Practitioners:

• Adults (18+) who are capable of giving informed consent
• Whose professional role includes supporting people with both substance use and end of life care needs.

For further information on this study please contact: sarah.galvani@mmu.ac.uk  or sarah.stanley@mariecurie.org.uk

Results:

The researchers working on this study have developed a website with information on substance use and palliative care: End of life care for people who use substances | (endoflifecaresubstanceuse.com)